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Framework for Rare Disease Interoperability Using FHIR and REDCap

RareLink: scalable REDCap-based framework for rare disease interoperability linking ...

A scalable framework was developed for rare disease interoperability linking FHIR instances conforming to the International Patient Summary.

November 18, 2025

Summary

A scalable framework, RareLink, was developed using REDCap to link FHIR instances for rare disease interoperability. This framework supports data conforming to the International Patient Summary standard.

Technology Note

FHIR(Fast Healthcare Interoperability Resources)は医療データ交換の国際標準。このエントリの関連技術: FHIR

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